My Miracle Leslie

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A Mother's love for her special needs child By Maureen Were ISBN 9966-60-006-6; 80 pages; publication 2016 Read more

This book is about the life of Leslie, a beautiful girl born with a rare condition- Trisomy 13. This condition is associated with severe intellectual disability and development challenges. Babies with the condition often have heart and brain defects, as well as severe feeding difficulties. It is very rare for a baby with Trisomy 13 to survive the first year of life. 90 percent of babies born with the condition die by the age of one. There is no scientific evidence that a parent could have done anything to cause or prevent the birth of  a baby with such a condition. Leslie's mother, Maureen, shares with us the ups and downs of her life with Leslie. You may know a special needs parent, or you may be one yourself. This is a heart-warming story, told sensitivity and movingly. It will bring comfort to parents of a child with a disability, and encourage the disheartened. It will inform the readers of the challenges in bringing up a special needs child. It will inform the readers of the challenges in bringing up a special needs child. It will highlight the loves such a child brings to its family and society, and it will be a reminder to all of us that disability is not inability.

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